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Resources & Links

Part of what the Brain Injury Alliance of Iowa strives to do every day is to be a resource for those who have been affected by brain injury.  Our staff can assist you with locating the information and resources that you might need in your community.  This list of online resources is not intended to be all-inclusive, however we feel that some of the information you will find here might give you a good start toward getting the information you are looking for. If you can’t find what you are looking for, don’t hesitate to call our office at 855-444-6443. We are your partners when it comes to learning, discovering, and managing a situation that can be filled with challenges and obstacles.

Click here! Information on Brain Injury
General information and videos about brain injury and recovery.
Click here! Pediatric Specific Information & Resources
General information and resources specific to brain injury in youth.
Click here! Overcoming Challenges after Brain Injury
Resources include information and supports for overcoming physical, cognitive, and emotional challenges as well as information for guardians, crime victims, and individuals experiencing discrimination.
Click here! Education Resources
Resources and information for returning to school, for individuals ranging from elementary age through college years.
Click here! Vocational Resources
Information and resources for supporting a return to work.
Click here! Aging Resources
Resources and supports for the aging population.
Click here! Military Resources
Resources and support available for individuals currently and previously serving our country in the armed services and their families.
Click here! Other Organizations & Support Groups
Links to other organizations which offer support.
Click here! Recursos en Español/Resources in Spanish
Varios enlaces informativos sobre las lesions cerebrales.
Click here! Miscellaneous
Links to Iowa and Federal agencies, and research studies.

This first section is Information on Brain Injury

BIA-Iowa Brain Injury Resource Network Information Kit
Also known as our “Virtual Tote Bag”.
 
Acute Brain Injury: A Guide for Family and Friends  
            This booklet provides basic information about brain injury and its treatment.
 
brainline.org
Brain injury facts, information, symptoms and support. Resources for preventing, treating, and living with brain injury.
 
Center for Disease Control (CDC) Injury Prevention & Control: Traumatic Brain Injury
Facts about Concussion and Brain Injury            
 
Lash & Associates Publishing/Training Inc
Brain injury books and resource center on traumatic brain injury, mild brain injury, concussion, blast injury and PTSD.
 
National Resource Center for Traumatic Brain Injury           
FAQs on Brain Injury, including problems after brain injury and special issues.
 
Pieces of the Puzzle (video)
            An Introduction to Brain Injury.  Produced by the University of Iowa.
 
Traumatic Brain Injury Survival Guide
By Dr Glen Johnson, this is an online book with a section on coping with common challenges.
 
Understanding Brain Injury (video series) 
These videos explain in simple language and images, what you should know about brain injury and recovery. 
 
Understanding Brain Injury: A Guide for the Family
This booklet contains information on the human brain, causes of acquired brain injury, the recovery process, and behavior, communication and physical changes after brain injury.
 
While You Wait
Practical information on the steps families might face while a loved one is in a coma: advocacy for care, financial matters, disability, social security, rehabilitation options and legal considerations.

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The next section is Pediatric Specific Information and Resources

My Child's Brain Injury: Helping Kids and Families Cope with Brain Injury (Courtesy BIA-NY)

A Guide To Being Heard: How to Advocate for your Child with Traumatic Brain Injury  (Courtesy BIA-NY)

The REAP project -- How families, schools, and medical professionals can create a Community-Based Concussion Management Program.  (Courtesy BIA-NY)

Green Hills AEA

Mississippi Bend AEA 9 (Bettendorf area)

Northwest AEA 4 (Sioux City area)

Parent Educator Connection

ASK Resource Center
Access for Special Kids (ASK) Resource Center is a training, information and advocacy center for children and adults with disabilities and their families throughout Iowa.
 
Brain Injury Quick Guide
            Information and Resources for Teachers and School Staff.
 
BrainLine Kids
Brain injury facts, information, symptoms and support with a focus on youth. Resources for preventing, treating, and living with brain injury.
 
Center for Disabilities and Development
The Center for Disabilities and Development is a part of University of Iowa Children's Hospital dedicated to improving the health and independence of people with disabilities and advancing the community systems on which they rely.
 
Disability Resource Library
A resource for people of all ages with disabilities of all kinds. It is also a resource for families, and for the service providers with whom they work.  DRL collections focus on information for, by, and about people with disabilities. Materials come in a variety of formats -- books, DVDs, training curricula, software, and assistive technology. You can borrow materials in person or by mail.
 
Family to Family Iowa
A statewide network of Family Navigators who provide assistance to families of children with special needs (developmental, behavioral, emotional, and/or physical).
 
Guide to Understanding Pediatric Brain Injury
            A publication from Mayo Clinic for parents and teachers.
 
Heads Up: Concussion in Youth Sports
To help ensure the health and safety of young athletes, CDC developed the Heads Up: Concussion in Youth Sports initiative to offer information about concussions to coaches, parents, and athletes involved in youth sports. The Heads Up initiative provides important information on preventing, recognizing, and responding to a concussion
 
Iowa Vocational Rehabilitation Services’ Student Transition Services
IVRS specializes in vocational information, planning and services. The purpose of working with an IVRS counselor is to help a student identify his/her maximum potential for work and strive to achieve the best possible job to match that potential.

My Child's Brain Injury: Helping Kids and Families Cope with Brain Injury (Courtesy BIA-NY)

A Guide To Being Heard: How to Advocate for your Child with Traumatic Brain Injury  (Courtesy BIA-NY)

Transitioning To The Adult World: Supporting Young Adults as They Grow Up  (Courtesy BIA-NY)

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The next section is Overcoming Challenges After Brain Injury

Able Data
AbleData provides objective information about assistive technology products and rehabilitation equipment.
 
Adaptive Sports Iowa 
Sport and recreation programming for Iowans with physical disabilities.
 
Assistive Technology for People with Hidden Disabilities
Booklet outlining common issues experienced by individuals following brain injury, and tips and devices for accommodating for those issues to assist in the individual maintaining a level of independence in the home and community.
 
B Independent
B Independent specializes in devices designed to make living easier, safer, less painful.  Assistive technology.  Aids to daily living.  Products that preserve dignity and encourage independence.
 
Disability Rights Iowa
Disability Rights IOWA aims to defend and promote the human and legal rights of Iowans who have disabilities and mental illness.
 
Guardianship and Conservatorship in Iowa
            Issues in Substitute Decision Making
 
Iowa Able Foundation
The Iowa Able Foundation helps Iowans with disabilities; their families and older Iowans access adaptive devices/equipment and home modifications through its loan programs.  Providing loans with flexible terms to help individuals increase their independence at home, at work, and in the community. This statewide, nonprofit program will loan funds for any item, piece of equipment or product that is used to improve an individual’s quality of life. 
 
Iowa Compass
Information and referral, a used equipment listing service (Used Equipment Referral Service) and legal advocacy and representation (Assistive Technology Legal Project) for Iowans with disabilities and their families, friends and service providers.
 
Iowa’s Home and Community Based Waiver Programs      
Iowa currently has seven Home and Community Based Waivers and a Consumer Choices Option, which gives you more control over how to choose your services. You must be eligible for Medicaid and also meet the requirements for the waiver you are applying for and/or receiving.
Brain Injury Waiver
Consumer Choice Option
 
NeuroPsychological Evaluations Information
A neuropsychological evaluation is often completed soon after an individual has a
traumatic brain injury or if an individual seems to be having difficulties related to an undiagnosed brain injury from the past. This handout outlines what a neuro-psychological evaluation is and how the results can be beneficial.
 
Practical Guide to Universal Home Design
Universal design is the idea of making things comfortable and convenient for as many different people at as many stages of life as possible.
 
Rural Solutions
Easter Seals of Iowa program to assist farm families and individuals in small towns across Iowa.  They offer agricultural work site and home modification consultations, peer support, services for the family, information and referrals, and medical equipment loan services.
 
Substance Abuse and TBI
Information for individuals with TBI and their families, as well as information for professionals.
 
Travelers with Disabilities and Medical Conditions
Information from the TSA about what to expect for passengers who have specific needs, conditions, and devices.

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The next section is Educational Resources

ASK Resource Center
Access for Special Kids (ASK) Resource Center is a training, information and advocacy center for children and adults with disabilities and their families throughout Iowa.
 
Area Education Agencies Brain Injury Resource Teams
AEA 267 (Cedar Falls area)
Grant Wood AEA 10 (Cedar Rapids area)
Green Hills AEA (Council Bluffs area)
Keystone AEA 1 (Elkader area)
Mississippi Bend AEA 9 (Bettendorf area)

Northwest AEA 4 (Sioux City area)
Prairie Lakes AEA 8 (Fort Dodge area)
Center for Partnering for Student Success
            Research and information on parent involvement in education.
 
Iowa Department of Education
            Special Education Information.
 
Family and Educator Partnership (FEP)
The Family and Educator Partnership (FEP) works to develop and sustain effective partnerships between families, educators, and community providers to promote success for all children and youth with disabilities
 
Disability Resources and Services
 
Iowa’s State Universities
Iowa State University Disability Resources
University of Iowa
University of Northern Iowa Office of Disability Services

Iowa’s Community Colleges
Des Moines Area Community College
Eastern Iowa Community College
Hawkeye Community College
Indian Hills Community College
Iowa Central Community College
Iowa Lakes Community College
Iowa Valley Community College
Iowa Western Community College
Kirkwood Community College
Northeast Iowa Community College
Northwest Iowa Community College
Southwestern Community College
Western Iowa Tech Community College 

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The next Section is Vocational Resources

Department of Human Services Policy Manual

Iowa Legal Code

Iowa Employer’s Disability Resource Network
An Iowa resource for the recruitment and retention of employees with disabilities.
 
Iowa Work Incentive Network Services (Iowa WINS)
Benefit Specialists at Iowa WINS can help explain how work would affect your benefits from the Social Security Administration as well as incentives that are available for you and/or your employer.
 
Iowa State Workforce Partners
Ticket to Work provides employment support to SSDI and SSI beneficiaries between the ages of 18-65.  There are seven state agencies that are State Workforce Partners.  Ticket to Work is just one of many work incentives offered through Social Security
 
Job Accommodation Network (JAN)
If you have a question about workplace accommodations or the Americans with Disabilities Act (ADA) and related legislation, JAN can help.
 
Understanding Brain Injury – A Guide for Employers
This useful guide for employers provides information about what to expect, what to watch for, and how to help employees who have sustained brain injuries adjust to the workplace.
 
Vocational Rehabilitation
The mission of the Iowa Vocational Rehabilitation Services is to work for and with individuals who have disabilities to achieve their employment, independence and economic goals. 

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The next section is Aging Resources

LifeLong Links, Iowa’s resource for older adults, adults with disabilities

What can you do to prevent falls?

Assessing your fall risk
 
Falls Prevention Program for Seniors
Older adult falls prevention guides for health care professionals, brochures, posters and more.

National Council on Aging Falls Prevention webpage

National Council on Aging YouTube channel
 
Iowa’s Home and Community Based Waiver Programs      
Iowa currently has seven Home and Community Based Waivers and a Consumer Choices Option, which gives you more control over how to choose your services. You must be eligible for Medicaid and also meet the requirements for the waiver you are applying for and/or receiving.
                        Elderly Waiver
 
Senior Health Insurance Information Program
Free, confidential service of the State of Iowa that helps Iowans make informed decisions about Medicare and other health coverage. 

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The next section is Military Resources


brainlinemilitary.org
Living with traumatic brain injury (TBI): help for service members, veterans, national guard, reserve, and families.
 
Defense and Veterans Brain Injury Center (DVBIC) Program
DVBIC's mission is to serve active duty military, their beneficiaries, and veterans with traumatic brain injuries through state-of-the-art clinical care, innovative clinical research initiatives and educational programs, and support for force health protection services.
 
Joint Services Support
            An advocate for Nation Guard Service Members, families, and Verterans.
(You can select your state by clicking on the purple shaded area that reads “Change” – on the top of the page)
 
Make the Connection
Shared experiences and support for Veterans
 
Military OneSource
Service members, family members, service providers, and command-welcome to Military OneSource. Policies, procedures, timely articles, cutting-edge social media tools, and support. All in one place, empowering our military community
 
National Resource Directory
Connecting wounded warriors, service members, veterans, their families and caregivers with those who support them.
 
Navigating Government Benefits & Employment: A guidebook for veterans with disabilities
This guidebook provides tools to help veterans and their families make choices that ensure the greatest financial success while remaining eligible for needed supports and services.
 
VA Caregiver Support
Learn more about the support and services VA offers family caregivers.
 
Vets 4 Warriors
A confidential peer support service and does not discuss your calls with the military, the VA, or anyone else and, if you choose, you may remain anonymous.
 
Zero to Three – Military Family Project         
Increase awareness and collaboration throughout the military community so that parents and professionals can more effectively care for very young children and their families. 

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The next section is Other Organizations and Support Groups

Brain Injury Alliance of Iowa – brain injury support groups

Iowa Stroke Task Force
 
United States Brain Injury Alliance
The national organization that BIA-Iowa is an affiliated member.  The mission of the United States Brain Injury Alliance is to engage the community in preventing brain injury and improving lives.
 
Advisory Council on Brain Injuries
The council’s mission is to represent individuals with brain injury, their families, and all Iowans through advocacy, education, training, rehabilitation, research and prevention. By means of these efforts, the council brings about awareness to others and services as a source of hope and healing to survivors of brain injury.

American Brain Tumor Association
Founded in 1973, the American Brain Tumor Association (ABTA) was the first national nonprofit organization dedicated solely to brain tumors. For 40 years, the ABTA has been providing comprehensive resources that support the complex needs of brain tumor patients and caregivers, as well as the critical funding of research in the pursuit of breakthroughs in brain tumor diagnosis, treatment and care.

American Stroke Association
            Listing of local Iowa groups available. 
(select your area by hovering your mouse over the “Your Local Branch” area at the top of the page.  This will bring a box up where you can enter your area code)
 
Brain Injury Association of America  
The mission of BIAA is to advance brain injury prevention, research, treatment and education and to improve the quality of life for all individuals impacted by brain injury. Through advocacy, we bring help, hope and healing to millions of individuals living with brain injury, their families and the professionals who serve them. 
 
Disability.gov
The site links to more than 14,000 resources from federal, state and local government agencies; academic institutions; and nonprofit organizations. You can find answers to questions about everything from Social Security benefits to employment to affordable and accessible housing.
 
Epilepsy Foundation - Iowa
Individualized information and assistance in such areas as educational advocacy, the Americans with Disabilities Act, access to medication assistance programs, and referral to epileptologists and neuropsychologists.
 
Iowa Association of Community Providers
IACP develops & provides high quality training opportunities for service providers throughout the state & offers providers access to cutting edge information in the field of brain injury rehabilitation.
 
Iowa Developmental Disabilities Council
The DD Council promotes the development of a coordinated system of services and supports that provide opportunities for people with developmental disabilities to be independent, productive, integrated and included in their communities.
 
Iowa Department for the Blind
The Iowa Department for the Blind helps educate, train and empower blind and visually impaired individuals to pursue lifelong goals. Offices located in Des Moines and field staff operating statewide.
 
Iowa’s Mental Health and Disability Services (MHDS) Commission
The Iowa Mental Health and Disability Services (MHDS) Commission is the state policy-making body for the provision of services to persons with mental illness, intellectual disabilities or other developmental disabilities, or brain injury.
 
National Alliance on Mental Illness - Iowa
There are 20 support groups in the state and other information contacts located around the state. Their office provides families with support, systems advocacy, and information services.
 
National Association of State Head Injury Administrators
The mission of NASHIA is to assist state government in promoting partnerships and building systems to meet the needs of individuals with brain injury and their families.
 
National Headache Foundation
Provides educational and informational resources, supporting headache research, and advocating for the understanding of headache as a legitimate neurobiological disease.
 
Vestibular Disorders Association
Provides access to information, offers a support network, and elevates awareness of the challenges associated with these disorders. The vestibular system includes the parts of the inner ear and brain that process the sensory information involved with controlling balance and eye movements. If disease or injury damages these processing areas, vestibular disorders can result.

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The next section is Recursos en Español (Resources in Spanish)

What information about brain injury is available in Spanish?

TBI Community

TBI Resources and Related Links – includes Spanish translations

Atención: conmoción cerebral en el deporte juvenil

Sobre la lesión cerebral traumática

Brain Injury Association of Florida Family Guide (a LARGE .pdf file)

Medtronic in Spain: What is Brain Injury (Acerca de la lesión cerebral)

Lesión Cerebral Traumática  (Traumatic Brain Injury)
Señales y consejos acerca de los traumatismos craneales, para informarles a los parientes de niños en particular.  (signs and tips about head injuries for families, particularly with children)
 
Problemas Conductuales Posteriors a Traumatismo Cranial (Coping with Behavior Problems after Head Trauma)
 
¿Qué es una Lesión Cerebral? Guía para Empleadores (Understanding Brain Injury a Guide for Employers)

Servicios Domesticos y Comunitarios Exception por Dano Cerebral Paquete de Informacion  (Medicaid Home and Community Based Services Brain Injury Waiver)

Centros para el Control y la Prevención de Enfermedades (Centers for Disease Control and Prevention) 

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The next section is Miscellaneous

IOWA GOVERNMENT

Brain Injury Waiver Provider Online Training
Crime Victim Assistance Division
Department of Human Rights
Division of Persons with Disabilities
Department of Human Service
Iowa Housing Search
Iowa Finance Authority
Iowa Division of Health Facilities
Iowa General Assembly
            Find your Legislator
Iowa Administrative Code
Iowa State Association of Counties

FEDERAL GOVERNMENT

Health Insurance Marketplace: Understand your benefits and connect to primary care and the preventive services that are right for you or your loved ones.

Social Security Disability 

Federal Traumatic Brain Injury Program
 
National Library of Medicine
            Bibliographies on Brain Injury (scroll down the page) 

RESEARCH

TBI Research Studies at NYC's Mt Sinai BI Research Center

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IMPORTANT: The contents of this website, informational packets or handouts, such as text, graphics, or images are for informational purposes only. The content is not intended to be a substitute for professional medical advice, diagnosis, or treatment or for legal advice or representation. Please seek out a medical or legal professional for those types of services.


Welcome to the Brain Injury Alliance of Iowa Web Site!